The convergence of technologies and emergence of interdisciplinary and transdisciplinary modus of knowledge production justify the need for research that explores the disinterestedness or interconnectivity of the information science disciplines. The quantum leap in knowledge production, increasing demand for information and knowledge, changing information needs, information governance, and proliferation of digital technologies in the era of ubiquitous digital technologies justify research that employs a holistic approach in x-raying the challenges of managing information in an increasingly knowledge- and technology-driven dispensation. The changing nature of knowledge production for sustainable development, along with trends and theory for enhanced knowledge coordination, deserve focus in current times. The Handbook of Research on Records and Information Management Strategies for Enhanced Knowledge Coordination draws input from experts involved in records management, information science, library science, memory, and digital technology, creating a vanguard compendium of novel trends and praxis. While highlighting a vast array of topics under the scope of library science, information science, knowledge transfer, records management, and more, this book is ideally designed for knowledge and information managers, library and information science schools, policymakers, practitioners, stakeholders, administrators, researchers, academicians, and students interested in records and information management.

Designed to protect the privacy of individual student test scores, grades, and other education records, the Family Educational Rights and Privacy Act (FERPA) of 1974 places limits the access of educational researches, and slows research not only in education but also in related fields, such as child welfare and health. Recent trends have converged to greatly increase the supply of data on student performance in public schools. Education policies now emphasize education standards and testing to measure progress toward those standards, as well as rigorous education research. At the same time, private firms and public agencies, including schools, have replaced most paper records with electronic data systems. Although these databases represent a rich source of longitudinal data, researchers' access to the individually identifiable data they contain is limited by the privacy protections of FERPA. To explore possibilities for data access and confidentiality in compliance with FERPA and with the Common Rule for the Protection of Human Subjects, the National Academies and the American Educational Research Association convened the Workshop on Protecting Student Records and Facilitating Education Research in April 2008.

This book's authoritative blend of theory and practice makes it a matchless resource for everyone in the archives and records management field.

Access and reference services are central to engaging with historical resources. As more people encounter archives for scholarly and avocational research, as part of creative pursuits, or to exercise their rights as citizens to access records, the possibilities for how collections are used will continue to evolve. Archivists need to be familiar with who their users are, understand why they're using archival collections, and engage in outreach so that they can provide excellent reference services. Reference and Access for Archives and Manuscripts outlines the various components of: providing physical, intellectual, and virtual access, acquiring reference knowledge and skills, navigating legal regulations and ethics, and designing use policies and effective outreach. Cheryl Oestreicher contextualizes how all of these components fit within other archival functions and offers strategies and detailed practices for creating comprehensive reference programs that archivists can adapt for any type of institution. Both new and experienced archivists will find Reference and Access for Archives and Manuscripts a solid foundation on which to add their own ideas for how to bring people into the archives as well as bring archives to the people. Readers are encouraged to examine these concepts and practices in conversation with others and to consider how archivists can continue to advance reference and access.

Bridging the fields of indigenous, early American, memory, and media studies, On Records illuminates the problems of communication between cultures and across generations. Andrew Newman examines several controversial episodes in the historical narrative of the Delaware (Lenape) Indians, including the stories of their primordial migration to settle a homeland spanning the Delaware and Hudson Rivers, the arrival of the Dutch and the first colonial land fraud, William Penn’s founding of Pennsylvania with a Great Treaty of Peace, and the “infamous” 1737 Pennsylvania Walking Purchase. As Newman demonstrates, the quest for ideal records—authentic, authoritative, and objective, anchored in the past yet intelligible to the present—has haunted historical actors and scholars alike. Yet without “proof,” how can we know what really happened? On Records articulates surprising connections among colonial documents, recorded oral traditions, material and visual cultures. Its comprehensive, probing analysis of historical evidence yields a multi-faceted understanding of events and reveals new insights into the divergent memories of a shared past.

This book trains the next generation of scientists representing different disciplines to leverage the data generated during routine patient care. It formulates a more complete lexicon of evidence-based recommendations and support shared, ethical decision making by doctors with their patients. Diagnostic and therapeutic technologies continue to evolve rapidly, and both individual practitioners and clinical teams face increasingly complex ethical decisions. Unfortunately, the current state of medical knowledge does not provide the guidance to make the majority of clinical decisions on the basis of evidence. The present research infrastructure is inefficient and frequently produces unreliable results that cannot be replicated. Even randomized controlled trials (RCTs), the traditional gold standards of the research reliability hierarchy, are not without limitations. They can be costly, labor intensive, and slow, and can return results that are seldom generalizable to every patient population. Furthermore, many pertinent but unresolved clinical and medical systems issues do not seem to have attracted the interest of the research enterprise, which has come to focus instead on cellular and molecular investigations and single-agent (e.g., a drug or device) effects. For clinicians, the end result is a bit of a “data desert” when it comes to making decisions. The new research infrastructure proposed in this book will help the medical profession to make ethically sound and well informed decisions for their patients.

This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.