This book focuses on young people (12-25 years old) growing up with a chronic somatic condition and/or physical disability, facing different challenges during their transition to adulthood and to adult healthcare services. Becoming an adult often proves extra challenging for them, because the adaptive tasks related to living with a chronic condition can clash with developmental milestones. Finding a good balance and integrating these tasks in daily life is also referred to as self-management. This book addresses self-management and empowerment of young people with chronic conditions as well as the Positive Youth Development concept. It elaborates on theories and approaches and offers a complete overview of self-management interventions for young people with chronic conditions, emphasizing on the tasks of medical, emotion and role management. It also elaborates on the roles and tasks of professionals, as well as the patient-provider relationship; the shifting roles between young people and their parents and the role of peer support. This book is unique in its broad view on self-management, i.e. it goes beyond medical management and focuses on young people achieving their maximum potential and a good quality of life. Furthermore, the book employs a positive youth development approach, focusing on empowerment and growth rather than problems or issues. It offers an overview of the state-of-the-art and evidence concerning self-management support for young people with various chronic conditions. As such it is of benefit for all healthcare professionals working in care for young people, but also for researchers interested in this topic.

Promoting Self-Management of Chronic Health Conditions covers a range of topics related to self-management-theories and practice, interventions that have been scientifically tested, and information that individuals with specific conditions should know (or be taught by healthcare professionals).

In the United States, chronic diseases currently account for 70 percent of all deaths, and close to 48 million Americans report a disability related to a chronic condition. Today, about one in four Americans have multiple diseases and the prevalence and burden of chronic disease in the elderly and racial/ethnic minorities are notably disproportionate. Chronic disease has now emerged as a major public health problem and it threatens not only population health, but our social and economic welfare. Living Well with Chronic Disease identifies the population-based public health actions that can help reduce disability and improve functioning and quality of life among individuals who are at risk of developing a chronic disease and those with one or more diseases. The book recommends that all major federally funded programmatic and research initiatives in health include an evaluation on health-related quality of life and functional status. Also, the book recommends increasing support for implementation research on how to disseminate effective longterm lifestyle interventions in community-based settings that improve living well with chronic disease. Living Well with Chronic Disease uses three frameworks and considers diseases such as heart disease and stroke, diabetes, depression, and respiratory problems. The book's recommendations will inform policy makers concerned with health reform in public- and private-sectors and also managers of communitybased and public-health intervention programs, private and public research funders, and patients living with one or more chronic conditions.

Self-management is a term that was used as early as the 1960s when it was applied during the rehabilitation of chronically ill children. Subsequently, self-management was applied as formalized programs for a variety of populations and health issues. In reflecting on self-management, it is important to note that it would be difficult for individuals not to be aware of their specific health behaviors, which could include unhealthy behaviors. As self-management has evolved, essential skills identified include behavioral modeling, decision making, planning, social persuasion, locating, accessing and utilizing resources, assisting individuals to form partnerships with their health care providers and taking action. These are key skills that would benefit health professional educators, clinicians and patients. This book, consisting of three parts, provides insights into the aspects of self-management as it relates to its definition and application. It highlights how self-management can be applied to various long-term health conditions, for different populations or target groups and in different contexts. The text provides an overview of self-management and the rationale for its applications by illustrating its use in specific clinical conditions and in different sub-populations and target groups. Academics can use the book as a textbook when teaching postgraduate and undergraduate students about self-management as a technique to facilitate community reintegration for individuals living with long-term conditions. It can also be used by clinicians to enhance their management of individuals with long-term conditions. Furthermore, researchers can use the text to expand and support their research in this area.

“Newman, Steed and Mulligan have provided an honest attempt to capture the essential practical material required for those working directly with clients in this growing area … As a broad introductory text, this book achieves its purpose.“ International Journal of Integrated Care "I feel this book would be a great addition on any adult nursing bookshelf, especially useful in health promotion, community and management modules. Any healthcare profession such as nurses, doctors, occupational therapists who deal with individuals with chronic illnesses will benefit from this book. I highly recommend this book, a 'must read' for nursing students." Isobel Weston, Nursing Student, Nottingham University, UK This groundbreaking book provides a much-needed overview of self-management in chronic physical illness. It provides the theoretical and conceptual background to self-management, as well as examining issues related to the delivery of self-management interventions in chronic illness. The chapters systematically review the efficacy and effectiveness of interventions in a range of different chronic conditions, including: Asthma Coronary artery disease Heart failure COPD Hypertension Diabetes Rheumatoid arthritis Authored by a range of leading international authors, each of them experts in the chronic diseases they discuss, the book is key reading for a wide range of health care professionals dealing with individuals with chronic conditions, including nurses, doctors, physiotherapists, health psychologists and occupational therapists. The book concludes by looking at the future of self-management for chronic illness. Contributors: Susan J. Blalock, Debbie Cooke, Angela Coulter, Robert F. DeVellis, Joe Ellins, Maarten J. Fischer, Wendy Hardeman, Eric S. Hart, Paul Higgs, Martin Hyde, Ad A. Kaptein, Kate Lorig, Patrick McGowan, Susan Michie, Debra K. Moser, Serap Osman, Jerry C. Parker, Sheetal Patel, Nina Rieckmann, Margreet Scharloo, Nancy E. Schoenberg, Timothy C. Skinner, Jane R. Smith, Lucia Snoei, Frank J. Snoek, Stephen Sutton, John Weinman, Manuel Paz Yepez

This comprehensive book thoroughly addresses all aspects of health care transition of adolescents and young adults with chronic illness or disability; and includes the framework, tools and case-based examples needed to develop and evaluate a Health Care Transition (HCT) planning program that can be implemented regardless of a patient’s disease or disability. Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is a uniquely inclusive resource, incorporating youth/young adult, caregiver, and pediatric and adult provider voices and perspectives. Part I of the book opens by defining Health Care Transition, describing the urgent need for comprehensive transition planning, barriers to HCT and then offering a framework for developing and evaluating health care transition programs. Part II focuses on the anatomic and neuro-chemical changes that occur in the brain during adolescence and young adulthood, and how they affect function and behavior. Part III covers the perspectives of important participants in the HCT transition process – youth and young adults, caregivers, and both pediatric and adult providers. Each chapter in Part IV addresses a unique aspect of developing HCT programs. Part V explores various examples of successful transition from the perspective of five key participants in the transition process - patients, caregivers, pediatric providers, adult providers and third party payers. Related financial matters are covered in part VI, while Part VII explores special issues such as HCT and the medical home, international perspectives, and potential legal issues. Models of HCT programs are presented in Part VIII, utilizing an example case study. Representing perspectives from over 75 authors and more than 100 medical centers in North America and Europe, Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is an ideal resource for any clinician, policy maker, caregiver, or hospitalist working with youth in transition.

This text systematically examines some of the key issues involved in the care of those with chronic diseases. It synthesises the evidence on what we know works (or does not) in different circumstances. From an international perspective, it addresses the prerequisites for effective policies and management of chronic disease.