Culturally powerful ideas of normalcy and deviation, individual responsibility, and what is medically feasible shape the ways in which we live with illness and disability. The essays in this volume show how illness narratives expressed in a variety of forms—biographical essays, fictional texts, cartoons, graphic novels, and comics—reflect on and grapple with the fact that these human experiences are socially embedded and culturally shaped. Works of fiction addressing the impact of an illness or disability; autobiographies and memoirs exploring an experience of medical treatment; and comics that portray illness or disability from the perspective of patient, family member, or caregiver: all of these narratives forge a specific aesthetic in order to communicate their understanding of the human condition. This collection demonstrates what can emerge when scholars and artists interested in fiction, life-writing, and comics collaborate to explore how various media portray illness, medical treatment, and disability. Rather than stopping at the limits of genre or medium, the essays talk across fields, exploring together how works in these different forms craft narratives and aesthetics to negotiate contention and build community around those experiences and to discover how the knowledge and experiences of illness and disability circulate within the realms of medicine, art, the personal, and the cultural. Ultimately, they demonstrate a common purpose: to examine the ways comics and literary texts build an audience and galvanize not just empathy but also action. In addition to the editors, the contributors to this volume include Einat Avrahami, Maureen Burdock, Elizabeth J. Donaldson, Ariela Freedman, Rieke Jordan, stef lenk, Leah Misemer, Tahneer Oksman, Nina Schmidt, and Helen Spandler. Chapter 7, “Crafting Psychiatric Contention Through Single-Panel Cartoons,” by Helen Spandler, is available as Open Access courtesy of a grant from the Wellcome Trust. A link to the OA version of this chapter is forthcoming.

A collection of essays exploring how fiction, life-writing, and comics portray illness, medical treatment, and disability.

Mr. Ito’s children act as his informal translators, but his doctor isn’t sure their translations are accurate or complete. Is Mr. Ito getting the medical information he needs? Ten-year-old Hannah arrives for her checkup with a bruised nose and an irritable father. Medical student Melanie is concerned for Hannah’s safety but wary of making accusations without evidence. Dr. Joshi worries that her patient is putting her husband, who is also Dr. Joshi’s patient, at risk by concealing a sexually transmitted disease. How can she act in the interest of both husband and wife without compromising doctor-patient confidentiality? Using the accessible and richly layered medium of comics, this collection reveals how ethical dilemmas in medical practice play out in real life. Designed for the classroom, Clinical Ethics provides an excellent introduction to medical ethics and presents case studies that will spark meaningful discussions among students and practitioners. The topics covered include patient autonomy, informed consent, unconscious bias, mandated reporting, confidentiality, medical mistakes, surrogate decision-making, and futility. The “Questions for Further Reflection” and “Related Readings” sections provide additional materials for a deeper exploration of the issues. Co-created by experts in clinical medicine, ethics, literature, and comics, Clinical Ethics presents a new way for students and practitioners to engage with fundamental concerns in medical ethics.

How does one deal with a diagnosis of Parkinson’s disease at the age of forty-three? My Degeneration, by former Anchorage Daily News staff cartoonist Peter Dunlap-Shohl, answers the question with humor and passion, recounting the author’s attempt to come to grips with the “malicious whimsy” of this chronic, progressive, and disabling disease. This graphic novel tracks Dunlap-Shohl’s journey through depression, the worsening symptoms of the disease, the juggling of medications and their side effects, the impact on relations with family and community, and the raft of mental and physical changes wrought by the malady. My Degeneration examines the current state of Parkinson’s care, including doctor/patient relations and the repercussions of a disease that, among other things, impairs movement, can rob patients of their ability to speak or write, degrades sufferers’ ability to deal with complexity, and interferes with the sense of balance. Readers learn what it’s like to undergo a dramatic, demanding, and audacious bit of high-tech brain surgery that can mysteriously restore much of a patient’s control over symptoms. But My Degeneration is more than a Parkinson’s memoir. Dunlap-Shohl gives the person newly diagnosed with Parkinson’s disease the information necessary to cope with it on a day-to-day basis. He chronicles the changes that life with the disease can bring to the way one sees the world and the way one is seen by the wider community. Dunlap-Shohl imparts a realistic basis for hope—hope not only to carry on, but to enjoy a decent quality of life.

Serious illness and mortality, those most universal, unavoidable, and frightening of human experiences, are the focus of this pioneering study which has been hailed as a telling and provocative commentary on our times. As modern medicine has become more scientific and dispassionate, a new literary genre has emerged: pathography, the personal narrative concerning illness, treatment, and sometimes death. Hawkins's sensitive reading of numerous pathographies highlights the assumptions, attitudes, and myths that people bring to the medical encounter. One factor emerges again and again in these case studies: the tendency in contemporary medical practice to focus primarily not on the needs of the individual who is sick but on the condition that we call disease. Pathography allows the individual person a voice-one that asserts the importance of the experiential side of illness, and thus restores the feeling, thinking, experiencing human being to the center of the medical enterprise. Recommended for medical practitioners, the clergy, caregivers, students of popular culture, and the general reader, Reconstructing Illness demonstrates that only when we hear both the doctor's and the patient's voice will we have a medicine that is truly human.

As we confront the challenges of emerging diseases, environmental health threats, and gaps in health equity, medical professionals need versatile communication tools that help people make informed decisions and engage them in constructive conversations about the health of their communities. This book illuminates the power of comics to meet that need. Graphic Public Health demonstrates the range and potential of comics to address topics such as immunization promotion, outbreak prevention, gun violence, opioid addiction prevention, and climate change. It features the work of acclaimed cartoonists Ellen Forney, David Lasky, and Roberta Gregory, pieces by up-and-coming artists, and comics that Meredith Li-Vollmer produced as a communications specialist for Seattle’s public health department. More than a collection of cartoons, this book connects comics with fundamentals of health communication and discusses why the form can be uniquely effective for these purposes. Each chapter focuses on the use of graphic public health in the context of four specific goals: health literacy, risk communication, health promotion, and advocacy. Li-Vollmer also includes guidance for practitioners getting started in creating comics for any form of public information, and especially for public health. Practical and purposeful, Graphic Public Health is a clarion call for the current era and an invaluable resource for public health professionals and advocates, scholars of comics and graphic studies, and fans of the graphic medicine genre.

Looking at Trauma: A Tool Kit for Clinicians is an easy-to-use, engaging resource designed to address the challenges health care professionals face in providing much-needed trauma psychoeducation to clients with histories of childhood trauma. Developed by trauma therapists Abby Hershler and Lesley Hughes in collaboration with artist Patricia Nguyen and biomedical communications specialist Shelley Wall, this book presents twelve trauma treatment models accompanied by innovative and engaging comics. The models help clinicians provide practical information about the impacts of trauma to their clients—and support those clients in understanding and managing their distressing symptoms. Topics covered include complex posttraumatic stress disorder, emotion regulation, memory, relationship patterns, and self-care. Each chapter features step-by-step instructions on how to use the treatment models with clients; practical educational tips from experienced clinicians in the field of childhood trauma; interactive trauma education comics; a foundational framework focused on care for the provider; and references for further study. Intended for use in therapeutic, clinical, and classroom settings, this book is a valuable resource for all healthcare workers. In particular, social workers, psychotherapists, spiritual care providers, nurses, occupational therapists, psychologists, primary care physicians, and psychiatrists will find this tool kit indispensable.