Even as life expectancies increase, increasing numbers of people are living with chronic illness and pain than ever before. Long-term self-management of chronic conditions involves negotiating the intersections of personal life choices, community and workplace structures, and family roles. Medical Humanism, Chronic Illness, and the Body in Pain: An Ecology of Wholeness proposes an ecological model of wholeness, which envisions wholeness in the dialogic engagement of the philosophical orientations of the biomedical and traditional medical systems. Vinita Agarwal proposes an integrative premise of being whole through revising the fundamental definitions of humanism, rethinking the self/body/environment, and thereby recognizing alternative ways of organizing knowledge and human experience as this model pushes the intersections of patient-centered care and sustainable health ethics. It is in the spaces of such intersections, Agarwal argues, that we accomplish healing as an integrative relationship of the individual with the multiple cultural logics underlying chronic conditions and the competing medical worldviews of our contemporary landscape. Scholars of communication, health, and medical humanities, along with practitioners working with patients who have chronic conditions, will find this book particularly useful.

"…excellent…" -- Choices - Choice on Dying Newsletter "Toombs, Barnard, and Carson have organized and edited a valuable series of papers that provide a rare perspective on the impact of chronic illness. Beginning with the person who is experiencing the chronic condition, they are able to weave an important blend of personal, social, and policy themes." -- Choice "This volume of collected essays is a solid contribution to the medical humanities literature on chronic illness... the contributors have produced a cohesive, systematic, and sensitive examination of issues in chronic illness and disability." -- Medical Humanities Review "Although it may seem to be intended largely for health care providers, this thought-provoking volume has much that will interest a wider lay audience." -- Medical and Health Annual An often moving exploration of the human, moral, and policy aspects of a health issue that affects each of us. Through first-person accounts and the perspectives of literature, medicine, philosophy, and religion, this book explores what it means to live with chronic illness and the implications of this experience for social policy, health care, bioethics, and the professions.

This exciting book draws on the insight and experience of 21 medical practitioners and researchers in the wider field of the medical humanities to ask fundamental questions related to illness, bodily experience, the experience and role of medical and healthcare professionals, and the contribution of language and communication to enable understanding. It opens up a range of conversations, reflections and research to present an innovative approach to the field of body studies, investigating complex questions that are associated with self and body and medical and healthcare professionals who work with bodies that are ill. Areas of pain, disability, vulnerability, life experienced through chronic conditions and the insights of listening to the ill and the dying are examined within the individual contributions. The chapters explore a range of key spaces, gaps and tensions between talk and bodies, from embodied experiences and patient-doctor relationships to negotiating institutional constraints and reading, looking and enacting as methods of improving intersubjective, relational and ethical practices.

The studies of the human being in health and illness and how he can be cared for is concerned with more than the biological aspects and thus calls for a broader perspective. Social sciences and medical humanities give insight into the context and conditions of being ill, caring for the ill, and understanding disease in a respective socio-cultural frame. This book brings together scholars from various countries who are interested in deepening the interdisciplinary discourse on the subject. This book is the outcome of the 4th global conference on "Making Sense of: Health, Illness and Disease," held at Mansfield College, Oxford, in July 2005. This volume will be of interest to students in the medical humanities, researchers as well as health care provider who wish to gain insight into the various perspectives through which we can understand health, illness and disease. It has been brought to our attention that in a chapter in this volume "Media Treatment of Organ Donation: A Case Study in Switzerland" By Peter J. Schulz direct reference and citation of the works of other scholars is often inconsistent and in some cases totally lacking. While we do not believe that it was the intention of the author of the article to misappropriate other persons' material, we do admit that the chapter does not meet standards currently expected of an academic publication. We regret any misappropriation of another author's language, thoughts, ideas, or expressions in our publications and will remain vigilant to prevent this recurring in the future. We give notice that the chapter has been retracted and will not appear in any future editions of the book. Brill, February 2016

This book is a wonderful educational journey written by someone with Sickle Cell Disease who trained while being sick to become a medical doctor. The author uses humor to tell her story. She shares about many things including making it through school with usual and unusual disability accommodations, natural things and simple techniques you can use to protect your health that are not found in textbooks, her experiences navigating the healthcare system, and even how to attract people to you, to name a few. This is a book that everyone with a chronic illness, or who knows someone with a chronic illness, should have. It is especially crucial for those with Sickle Cell Disease and chronic pain, because it reads like a survivor manual.

"With case studies drawn from anthropological investigations of chronic pain sufferers and pain clinics in the northeastern United States, the authors attempt to invent new ways of writing about this language-resistant human experience. Focused on substantive issues in the study of chronic pain, their work explores the great divide between the culturally shaped language of suffering and the traditional language of medical and psychological theorizing. They argue that the representation of experience in local social worlds is a central challenge to the human sciences and to ethnographic writing, and that meeting that challenge is also crucial to the refiguring of pain in medical discourse and health policy debates. Anthropologists, scholars from the medical social sciences and humanities, and many general readers will be interested in Pain as Human Experience. In addition, behavioral medicine and pain specialists, psychiatrists, and primary care practitioners will find much that is relevant to their work in this book."--Jacket.

The Nature of Suffering underscores the change that is taking place in medicine from a basic concern with disease to a greater focus on the sick person. Cassell centers his discussion on the problem of suffering because, he says, its recognition and relief are a test of the adequacy of any system of medicine. He describes what suffering is and its relationship to the sick person: bodies do not suffer, people do. An exclusive concern with scientific knowledge of the body and disease, therefore, impedes an understanding of suffering and diminishes the care of the suffering patient. The growing criticism that medicine is not sufficiently humanistic does not go deep enough to provide a basis for a new understanding of medicine. New concepts in medicine must have their basis in its history and in the development of ideas about disease and treatment. Cassell uses many stories about patients to demonstrate that, despite the current dominance of science and technology, there can be no diagnosis, search for the cause of the patient's disease, prognostication, or treatment without consideration of the individual sick person. Recent trends in medicine and society, Cassell believes, show that it is time for the sick person to be not merely an important concern for physicians but the central focus of medicine. He addresses the exciting problems involved in such a shift. In this new medicine, doctors would have to know the person as well as they know the disease. What are persons, however, and how are doctors to comprehend them? The kinds of knowledge involved are varied, including values and aesthetics as well as science. In the process of knowing the experience of patient and doctor move to center stage. He believes that the exploration of the person will engage medicine in the 21st century just as understanding the body has occupied the last hundred years.