Examines how the framing of disability has serious implications for legal, medical, and policy treatments of disability.

The Disability Bioethics Reader is the first introduction to the field of bioethics presented through the lens of critical disability studies and the philosophy of disability. Introductory and advanced textbooks in bioethics focus almost entirely on issues that disproportionately affect disabled people and that centrally deal with becoming or being disabled. However, such textbooks typically omit critical philosophical reflection on disability. Directly addressing this omission, this volume includes 36 chapters, most appearing here for the first time, that cover key areas pertaining to disability bioethics, such as: state-of-the-field analyses of modern medicine, bioethics, and disability theory health, disease, and the philosophy of medicine issues at the edge- and end-of-life, including physician-aid-in-dying, brain death, and minimally conscious states enhancement and biomedical technology invisible disabilities, chronic pain, and chronic illness implicit bias and epistemic injustice in health care disability, quality of life, and well-being race, disability, and healthcare justice connections between disability theory and aging, trans, and fat studies prenatal testing, abortion, and reproductive justice. The Disability Bioethics Reader, unlike traditional bioethics textbooks, also engages with decades of empirical and theoretical scholarship in disability studies—scholarship that spans the social sciences and humanities—and gives serious consideration to the history of disability activism.

Jackie Leach Scully argues that bioethics cannot avoid the task of considering the moral meaning of disability in humans - beyond simply regulating reproductive choices or new areas of biomedical research. By focusing on the experiential and empirical reality of impairment, and drawing on recent work in disability studies, Scully brings new attention to complex ethical questions surrounding disability. Impairment is variously considered as a set of social relations and practices, as experienced embodiment, and as an emancipatory movement, as well as a biomedical phenomenon. In this way, disability is joined to the general late-twentieth century trend of attending to difference as a significant and central axis of subjectivity and social life.

Bioethics and Disability provides tools for understanding the concerns, fears and biases that have convinced some people with disabilities that the health care setting is a dangerous place and some bioethicists that disability activists have nothing to offer bioethics. It wrestles with the charge that bioethics as a discipline devalues the lives of persons with disabilities, arguing that reconciling the competing concerns of the disability community and the autonomy-based approach of mainstream bioethics is not only possible, but essential for a bioethics committed to facilitating good medical decision making and promoting respect for all persons, regardless of ability. Through in-depth case studies involving newborns, children and adults with disabilities, it proposes a new model for medical decision making that is both sensitive to and sensible about the fact of disability in medical cases.

How should we respond to individuals with disabilities? What does it mean to be disabled? Over fifty million Americans, from neonates to the fragile elderly, are disabled. Some people say they have the right to full social participation, while others repudiate such claims as delusive or dangerous. In this compelling book, three experts in ethics, medicine, and the law address pressing disability questions in bioethics and public policy. Anita Silvers, David Wasserman, and Mary B. Mahowald test important theories of justice by bringing them to bear on subjects of concern in a wide variety of disciplines dealing with disability. They do so in the light of recent advances in feminist, minority, and cultural studies, and of the groundbreaking Americans with Disabilities Act. Visit our website for sample chapters!

In a critical intervention into the bioethics debate over human enhancement, philosopher Melinda Hall tackles the claim that the expansion and development of human capacities is a moral obligation. Hall draws on French philosopher Michel Foucault to reveal and challenge the ways disability is central to the conversation. The Bioethics of Enhancement includes a close reading and analysis of the last century of enhancement thinking and contemporary transhumanist thinkers, the strongest promoters of the obligation to pursue enhancement technology. With specific attention to the work of bioethicists Nick Bostrom and Julian Savulescu, the book challenges the rhetoric and strategies of enhancement thinking. These include the desire to transcend the body and decide who should live in future generations through emerging technologies such as genetic selection. Hall provides new analyses rethinking both the philosophy of enhancement and disability, arguing that enhancement should be a matter of social and political interventions, not genetic and biological interventions. Hall concludes that human vulnerability and difference should be cherished rather than extinguished. This book will be of interest to academics working in bioethics and disability studies, along with those working in Continental philosophy (especially on Foucault).

Uses literature to understand and remake our ethics regarding nonhuman animals, old human beings, disabled human beings, and cloned posthumans Literary Bioethics argues for literature as an untapped and essential site for the exploration of bioethics. Novels, Maren Tova Linett argues, present vividly imagined worlds in which certain values hold sway, casting new light onto those values; and the more plausible and well rendered readers find these imagined worlds, the more thoroughly we can evaluate the justice of those values. In an innovative set of readings, Linett thinks through the ethics of animal experimentation in H.G. Wells’s The Island of Doctor Moreau, explores the elimination of aging in Aldous Huxley’s Brave New World, considers the valuation of disabled lives in Flannery O’Connor’s The Violent Bear It Away, and questions the principles of humane farming through reading Kazuo Ishiguro’s Never Let Me Go. By analyzing novels published at widely spaced intervals over the span of a century, Linett offers snapshots of how we confront questions of value. In some cases the fictions are swayed by dominant devaluations of nonnormative or nonhuman lives, while in other cases they confirm the value of such lives by resisting instrumental views of their worth—views that influence, explicitly or implicitly, many contemporary bioethical discussions, especially about the value of disabled and nonhuman lives. Literary Bioethics grapples with the most fundamental questions of how we value different kinds of lives, and questions what those in power ought to be permitted to do with those lives as we gain unprecedented levels of technological prowess.